Important Safety Information

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Connect with a Patient Access Manager Our Patient Access Managers are here to make sure you never walk alone on your PPP journey. Thank you! We’ve received your message and will be in touch shortly.

Patient Mentors

PPP MentorConnect Talk to someone who gets it: Discover PPP MentorConnect™ PPP MentorConnect can put you in touch with another person taking KEVEYIS who may understand your experience. Whether you’re an adult living with PPP or a caregiver for someone with the condition, you can connect with a mentor who can offer valuable insights and a supportive […]

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COMPLIMENTARY SUPPORT Patient Access Managers: Here for you — at no cost Our Patient Access Managers are here to help you, from answering questions to simply listening. This service is available for free. COMPLIMENTARY SUPPORT Once you’re matched with a Patient Access Manager, they can: Connect you to others with PPP Ensure you receive personalized PPP […]

Patient Access Managers

PPP Support Patient Access Managers Our Patient Access Managers are here to make sure you never walk alone on your PPP journey. Learn more about their stories and why they can’t wait to connect with you. COMPLIMENTARY SUPPORT Connect with a Patient Mentor

Patient Stories

LIVING WITH PPP Patient Stories See why people choose KEVEYIS. Dennis Dennis was 14 when he had his first PPP episode. See how it changed his life, and how he handled the diagnosis.   Watch his story Janine Janine lived with an incorrect diagnosis for 10 years. Learn about her path to receiving the right […]

Find a KEVEYIS provider

Find a KEVEYIS provider Fill out the form below and we will be in touch to help you find a healthcare provider who specializes in Primary Periodic Paralysis and can prescribe KEVEYIS. Thank you! We’ve received your message and will be in touch shortly.

PPP in the Family

Discussing Primary Periodic Paralysis with your family Talking about PPP with your family can be hard, but sharing your experience can empower your family. We can help you get the conversation started. PPP is usually an inherited condition1 Your family members may not know they have PPP. Or, if they’re experiencing symptoms, they may not […]

PPP Management

Manage your Primary Periodic Paralysis today — and for the future PATIENT TESTIMONIAL “For someone…with PPP, there really is hope. Things can be so much better once you have a treatment plan in place.” Janine, “>”>KEVEYIS Patient and PPP Mentor Finding the right PPP treatment plan You may face a lot of stress as you […]

Tools and Resources

ADDITIONAL GUIDANCE Tools & Resources Downloadable guides Community resources Uncover PPP with genetic testing Learn about a no-cost genetic testing program for PPP patients and their family members who have symptoms of periodic paralysis. Get the Genetic Testing guide Discussing PPP with your family Learn how to prepare to speak with your family about PPP […]

Patient Support

COMPLIMENTARY SUPPORT Xeris CareConnection™: Get the Primary Periodic Paralysis support you need — at no cost Managing PPP takes more than medication alone. That’s why we created Xeris CareConnection™ — a range of free support services for the PPP community. Free, personalized support with Patient Access Managers You don’t have to walk your PPP journey […]

INDICATION AND IMPORTANT SAFETY INFORMATION — READ MORE

Indication and Important Safety Information

 

What is KEVEYIS?

KEVEYIS (pronounced keh-VAY-iss) (dichlorphenamide) is a prescription drug used to treat primary hyperkalemic periodic paralysis, primary hypokalemic periodic paralysis, and other similar diseases.

 

What should you tell your healthcare provider before taking KEVEYIS?

Tell your doctor if you are allergic to dichlorphenamide or other sulfa drugs; if you take high doses of aspirin, or if you have lung or liver disease; if you are pregnant, plan to become pregnant, or are breastfeeding or plan to breastfeed.

 

What should you know about KEVEYIS?

  • Severe allergic and other reactions have happened with sulfonamides (drugs such as KEVEYIS) and have sometimes been fatal. Stop taking KEVEYIS at the first sign of skin rash, swelling, difficulty breathing, or any other unexpected side effect or reaction, and call 911 right away.
  • Tell your healthcare provider if you take aspirin or if another healthcare provider instructs you to begin taking aspirin. High doses of aspirin should not be taken with KEVEYIS.
  • KEVEYIS can cause your body to lose potassium, which can lead to heart problems. Your healthcare provider will measure the potassium levels in your blood before you start treatment and at certain times during treatment.
  • Tell your healthcare provider about all other prescription and over-the-counter medicines you take, including supplements, as some medicines can interact with KEVEYIS.
  • While taking KEVEYIS, your body may produce too much acid or may not be able to remove acid from the body. Your healthcare provider may run tests on a regular basis to check for signs of acid buildup.
  • KEVEYIS may increase your risk of falling. Tell your healthcare provider right away if you experience a fall while taking KEVEYIS.
  • The risks of falls and acid buildup are greater in elderly patients.
  • It is not known whether KEVEYIS is safe or effective for people younger than 18 years of age.

 

What are the most common side effects with KEVEYIS?

The most common side effects are a feeling of numbness, tingling or burning (“pins and needles”) in the toes, feet, hands or fingers; trouble with memory or thinking; feeling confused; and unpleasant taste in the mouth.

These are not all of the possible side effects of KEVEYIS. Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.

Please see Full Prescribing Information.

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