Every patient’s journey with Primary Periodic Paralysis PPP is different
Delayed and missed diagnoses
Some patients are fortunate to receive a diagnosis early on. However, for many patients the road to an answer can be long and trying. PPP often has nonspecific and episodic symptoms that mimic those of more common diseases, resulting in years of diagnostic delays and misdiagnoses.1
- *Based on a survey of 66 self-selected patients over the age of 40 years with a clinical diagnosis of Primary Periodic Paralysis who sought support via the Internet.2
Establishing a PPP diagnostic protocol
Strongbridge Biopharma, as part of its commitment to helping patients, sponsored a roundtable discussion with expert clinicians in the field about PPP clinical challenges and best practices. The output of that discussion was a white paper including a detailed diagnostic algorithm for PPP, shown below, which could help you identify PPP in your patients so that they can learn to manage their condition, and receive treatment.
For more information on the diagnostic journey of PPP, read the white paper.
Management strategies for PPP
These strategies, including both lifestyle changes and medical approaches, may help your patients manage their PPP on a daily basis.
Attacks may be minimized with:
- Avoiding triggers
- Mild exercise
- Changes to diet
Medical approaches, both for prevention and management
Attacks may be managed by:
- Prescribing medications such as KEVEYIS
- OTC medications:
- Oral potassium salts
- Inhalation of salbutamol
- Intravenous medications:
- Calcium gluconate