Helpful and informative resources for you
This sample Appeal Letter — Formulary Exception offers you an example outline of support for coverage of KEVEYIS as medically necessary for a patient who does not have the therapy on formulary.Download Now
Strongbridge Biopharma sponsored a roundtable discussion featuring expert clinicians and researchers in the field of neuromuscular disorders. These experts then developed a series of white papers to help physicians identify and address the clinical challenges of PPP.
Primary Periodic Paralysis:
Helpful and informative resources for your patients
Learn more about Uncovering Periodic Paralysis, a no-cost genetic testing program for patients and their family members who have symptoms of hyperkalemic or hypokalemic periodic paralysis.Download Now
Your patients can keep track of their attacks and treatment progress with the Daily Tracker & 3-Month Diary. Having them bring this information to their next appointment will help you have an informed conversation.Download Now
Your patients may need help understanding possible side effects of KEVEYIS and symptoms of PPP. These brochures can help educate them about treatment-related side effects, as well as strategies for managing them. As always, you are their best source of advice. These brochures are simply educational tools.
An Online PPP Community
The Inspire online community connects patients and caregivers living with PPP. Members share stories of support on how they are living and thriving with PPP as well as valuable information.Learn more
Muscular Dystrophy Association (MDA)
A nonprofit organization whose mission is to provide hope and answers to families living with diseases that take away muscle strength and mobility.Learn more
Periodic Paralysis Association
The Periodic Paralysis Association is a nonprofit charitable corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the periodic paralysis community.Learn more
Periodic Paralysis International
A mission-driven, independent and not-for-profit whose goal is to help create successful partnerships between physicians, researchers, and periodic paralysis patients in order to speed diagnosis and improve therapy and management strategies, thereby improving quality of life and clinical outcomes for patients.Learn more