Helpful and informative resources for you
Better understand Primary Periodic Paralysis with the Disease Education Brochure. This informative and comprehensive look at the disease includes insight on diagnosis and disease management.
This sample Appeal Letter — Formulary Exception offers you an example outline of support for coverage of KEVEYIS as medically necessary for a patient who do not have the therapy on formulary.
Helpful and informative resources for your patients
Learn more about Uncovering Periodic Paralysis, a no-cost genetic testing program for patients and their family members who have symptoms of hyperkalemic or hypokalemic periodic paralysis.
Your patients can keep track of their attacks and treatment progress with the Daily Tracker & 3-Month Diary. Having them bring this information to their next appointment will help you have an informed conversation.
An Online PPP Community
The Inspire online community connects patients and caregivers living with PPP. Members share stories of support on how they are living and thriving with PPP as well as valuable information.
Muscular Dystrophy Association (MDA)
A nonprofit organization whose mission is to provide hope and answers to families living with diseases that take away muscle strength and mobility.
Periodic Paralysis Association
The Periodic Paralysis Association is a nonprofit charitable corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the periodic paralysis community.
Periodic Paralysis International
A mission-driven, independent and not-for-profit whose goal is to help create successful partnerships between physicians, researchers, and periodic paralysis patients in order to speed diagnosis and improve therapy and management strategies, thereby improving quality of life and clinical outcomes for patients.