Celebrating 10 years of PPP Support! See how we ensure you never walk alone here.

Celebrating 10 years of PPP Support!

Important Safety Information

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Discussing Primary Periodic Paralysis with your family

Talking about PPP with your family can be hard, but sharing your experience can empower your family. We can help you get the conversation started.

PPP is usually an inherited condition1

Your family members may not know they have PPP. Or, if they’re experiencing symptoms, they may not realize that those symptoms could be caused by PPP.

If you’re worried that someone in your family may have PPP, you can pass along facts and useful information in a sensitive way. As your family facilitator, you can help guide their path by encouraging them to discuss PPP with their doctor.

Get the Family Facilitator guide

GENETIC TESTING

Uncover periodic paralysis in your family

If you think you or your family members may have PPP, a genetic test can help shorten the journey to diagnosis and speed up the path to developing a treatment plan.1

Genetic testing does not capture all the genes associated with PPP.1 It can only confirm a PPP diagnosis in about 70% of people. The remaining 30% of people may have a negative or inconclusive test, but still have PPP.

Xeris Pharmaceuticals® offers a no-cost Periodic Paralysis genetic test to:
  • People with episodic muscle weakness or temporary paralysis associated with common triggers of PPP
  • First-degree family members of anyone diagnosed with PPP
Get the Genetic Testing Guide
Get the Genetic Testing Guide

References

  1. Statland JM, Fontaine B, Hanna MG, et al. Review of the diagnosis and treatment of periodic paralysis. Muscle Nerve. 2018;57:522-530.

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Get customized support for your KEVEYIS journey. Simply fill out the information and a Patient Access Manager will contact you. They will walk you through the entire process, from diagnosis to treatment and beyond.

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