Starting your KEVEYIS journey

Implementing a treatment plan is a move in the right direction. KEVEYIS can help you gain greater control over PPP episodes. It’s proven to reduce the number, severity and length of PPP episodes.1,2

Get the most out of your treatment

Keep in mind that everyone’s treatment journey is different, and it may take some time to find the right KEVEYIS dose.1

To get the most out of your treatment, remember the 3 T’s:

Take

Take your prescribed amount every day. Avoid skipping doses, which can lead to episodes of muscle weakness and/or temporary paralysis. If you miss a dose, take your next dose as scheduled.

Track

Track your episodes and how they change using the Daily Tracker Tool. This will help your doctor determine if you’re taking the right amount.

Talk

Talk regularly with your doctor to ensure KEVEYIS is working for you. It’s normal for your doctor to increase or decrease your dosage, especially in the first 9 weeks.2

Stay with it

KEVEYIS is a long-term treatment meant to be taken daily. Reach out to your doctor or our Patient Access Managers at any time on your KEVEYIS journey for support.

In clinical studies, people noticed benefits of taking Keveyis as they saw continued reduction of their attacks at 1 year.2*

*The double-blind, placebo-controlled study of 9 weeks (N=65) was followed by a 1-year, open-label extension phase (N=58) in which all participants received KEVEYIS. The number, severity and duration of PPP attacks were assessed from weeks 2 to 9 of the double-blind, placebo-controlled study and during weeks 54 to 61 of the 1 year open-label extension.2

PATIENT TESTIMONIAL

“Having better control over my PPP symptoms has meant I can engage more fully in my life. I can babysit my beautiful granddaughter, go out with friends, and have more independence. I worry much less now about falling or having to be rushed to the hospital.”

KEVEYIS common side effects1

It’s normal to experience certain side effects when you start taking KEVEYIS. Some side effects can be resolved with proper techniques or dose adjustment with the help of your doctor.1

Tingling or prickling sensations
(pins and needles)

Confusion or trouble paying attention

Changes in taste

Brain fog

PPP MANAGEMENT

Set treatment goals and track progress

Setting treatment goals with your doctor is a great way to track your progress while on treatment.

Treatment goals should be specific to you and could include:

  • Participating in an activity you enjoy
  • Going back to work
  • Traveling
 

Use the Daily Tracker Tool to stay on top of your PPP management. Remember to keep your healthcare providers informed of your progress and any side effects.

COMPLIMENTARY SUPPORT

Speak with people who understand

PPP MentorConnect™ can put you in touch with another person taking KEVEYIS who may understand what you’re going through. Whether you’re an adult with PPP or a caregiver of someone with PPP, you can connect with someone who gets it.

By submitting this form, I understand I am giving Xeris Pharmaceuticals, Inc., its affiliates, and business partners permission to use the personal information provided in this registration form to contact me by the following methods, but not limited to: mail, email, telephone call or in-person about disease and product information, disease or product-related events, support services, market research, and to share promotional and marketing information. By submitting this form, I consent to these uses and am confirming that I have read and agree to the Xeris Pharmaceuticals® Terms of Use and Privacy Statement. I understand I can unsubscribe by clicking on the unsubscribe link in future communications or by sending a letter with my full contact information (eg, name, address, email, phone, etc) to Xeris CareConnection™ Patient Support Services, 1375 W Fulton Street, Suite 1300, Chicago, IL 60607.

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References

  1. KEVEYIS [package insert]. Chicago, IL; Xeris Pharmaceuticals.
  2. Sansone VA, Burge J, McDermott MP, et al; for the Muscle Study Group. Randomized, placebo-controlled trials of dichlorphenamide in periodic paralysis. Neurology. 2016;86:1408-1416.

Find answers

Take the next step

Get customized support for your KEVEYIS journey. Simply fill out the information and a Patient Access Manager will contact you. They will walk you through the entire process, from diagnosis to treatment and beyond.

By submitting this form, I understand I am giving Xeris Pharmaceuticals, Inc., its affiliates, and business partners permission to use the personal information provided in this registration form to contact me by the following methods, but not limited to: mail, email, telephone call or in-person about disease and product information, disease or product-related events, support services, market research, and to share promotional and marketing information. By submitting this form, I consent to these uses and am confirming that I have read and agree to the Xeris Pharmaceuticals® Terms of Use and Privacy Statement. I understand I can unsubscribe by clicking on the unsubscribe link in future communications or by sending a letter with my full contact information (eg, name, address, email, phone, etc) to Xeris CareConnection™ Patient Support Services, 1375 W Fulton Street, Suite 1300, Chicago, IL 60607.

Thank you!

We’ve received your message and will be in touch shortly.