Support to help you manage the condition
Finding out you have primary periodic paralysis may cause concerns and questions about what this diagnosis means for you, both today and into your future. That’s why we’ve developed a variety of tools and resources to help you learn more about your condition and get the most out of the treatment plan your doctor recommends.
Primary Periodic Paralysis daily tracker tool and 3-month diary
The Daily Tracker Tool is a downloadable PDF that gives you an easy-to-use form to keep a record of your attacks, including:
- When they occurred
- What triggers were involved
- How severe they were
- How they affected you
Keeping track of this information will help you better understand your attacks so you can have more informed conversations with your doctor.
The 3-Month Diary is designed to help you in becoming your own advocate. This downloadable form lets you summarize key information your attacks over a 3-month period, including:
- A summary of your attacks
- How lifestyle modifications and medications worked
- How the attacks impacted your life
Collecting this information on a single, at-a-glance form will help guide you and your doctor in discussions about your condition and individual management needs.
Doctor Discussion Guide
The Doctor Discussion Guide is a PDF for you to use in planning ahead for your doctor visits. It is designed to help you:
- Organize your thoughts and health information
- Put together a list of questions for your doctor
Using this guide as a checklist will help you get ready for your visit so you get all the answers you need before you leave the office and feel confident about your treatment plan.