Support to help you manage the condition
Finding out you have Primary Periodic Paralysis (PPP) may cause concerns and questions about what this diagnosis means for you, both today and into your future. That’s why we’ve developed a variety of tools and resources to help you learn more about your condition and get the most out of the treatment plan your doctor recommends.
Learn more about Uncovering Periodic Paralysis, a no-cost genetic testing program for patients and their family members who have symptoms of hyperkalemic or hypokalemic periodic paralysis.Download Now
Recording the details of your attacks can help you and your doctor understand your disease. The downloadable Daily Tracker Tool give you an easy-to-use form to note when the attack occurred, how long and how severe it was, if there were any triggers, and more.
For a more complete look at how you live with your PPP, the 3-Month Diary is a helpful tool that lets you compile and summarize the details of your attacks, understand which treatments and lifestyle changes have worked, and how the attacks and PPP have impacted your life.Download Now
There may be times that you find it hard to tell if what you’re feeling are possible side effects or symptoms of PPP. These brochures can help you better understand treatment-related side effects, as well as strategies for managing them. As always, your healthcare team is your best source of advice. These brochures can help you in starting those conversations.
In January 2019, Strongbridge Biopharma sponsored a meeting that brought together a group of experts in treating and researching PPP. Their discussion resulted in this paper: an overview of some of the characteristics and causes of PPP, as well as tests used to help guide the diagnosis.Read the White Paper
PPP DocFinder tool
In support of the PPP community, Strongbridge Biopharma has created the PPP DocFinder. This resource will help you find doctors who have experience diagnosing and managing PPP.
An Online PPP Community
The Inspire online community connects patients and caregivers living with PPP. Members share stories of support on how they are living and thriving with PPP as well as valuable information.Learn more
Muscular Dystrophy Association (MDA)
A nonprofit organization whose mission is to provide hope and answers to families living with diseases that take away muscle strength and mobility.Learn more
Periodic Paralysis Association
The Periodic Paralysis Association is a nonprofit charitable corporation founded to foster awareness of the periodic paralyses, promote science-based information regarding this class of disorder, and champion the interests of the periodic paralysis community.Learn more
Periodic Paralysis International
A mission-driven, independent and not-for-profit whose goal is to help create successful partnerships between physicians, researchers, and periodic paralysis patients in order to speed diagnosis and improve therapy and management strategies, thereby improving quality of life and clinical outcomes for patients.Learn more