Support starts here
Patient Support Advocates are caring individuals who want to help. Whether you’re an adult living with Primary Periodic Paralysis (PPP), or caring for someone who is, Patient Support Advocates can help you with:
- PPP disease education
- Diagnosis and treatment information
- Strategies to avoid triggers
- Meeting other people living with PPP
Strongbridge CareConnection makes sure you’re getting the support you need
Strongbridge is committed to providing a wide range of services and support for people living with Primary Periodic Paralysis and their family members.
- A dedicated case manager is assigned to every patient
- Patient access managers are available to work directly with patients and healthcare providers to overcome common barriers to therapy
- Patients receive routine calls from a licensed pharmacist, which focus on progress and goals of therapy and disease management
- Current KEVEYIS patients share their treatment experiences to help inform others
- Phone conversations can be scheduled with mentors to discuss their PPP journeys
- Support in understanding insurance coverage
- Information on a $0 co-pay program and other financial assistance
- Access to a patient assistance program for patients without insurance coverage
- Convenient, free specialty pharmacy services
- Home delivery of prescription and refills
- 24/7 support
- Information about Primary Periodic Paralysis
- Information about a treatment option
- Links to events sponsored by advocacy organizations
- Online patient communities
- Learn more about Primary Periodic Paralysis advocacy groups
These services are designed to support your treatment with KEVEYIS. However, they do not replace discussions with your doctor. You should be sure to talk with your doctor if you have any questions about your health or treatment.
“My doctor and I decided that KEVEYIS might be a good fit for me and a Strongbridge CareConnection Patient Support Advocate helped me get started. She talked me through all the assistance they provide and continues to check in with me to see how I’m doing and to find out if I need a refill.”
*Eligible patients pay as little as $0 with a maximum annual savings of $10,000. The authorized specialty pharmacy will activate the copay card for eligible patients and apply for each prescription until the annual maximum has been reached. This card is not valid for prescriptions that may be reimbursed under a federal or state healthcare program, including Medicare, Medicaid, or any other similar federal or state healthcare program, including any state pharmacy assistance program. For additional questions about the co-pay program, including eligibility, call Strongbridge CareConnection at 844-KEVEYIS (538‑3947)
Indication and Important Safety Information
What is KEVEYIS?
KEVEYIS (pronounced keh-VAY-iss) (dichlorphenamide) is a prescription drug used to treat primary hyperkalemic periodic paralysis, primary hypokalemic periodic paralysis, and other similar diseases.
What should you tell your healthcare provider before taking KEVEYIS?
Tell your doctor if you are allergic to dichlorphenamide or other sulfa drugs; if you take high doses of aspirin, or if you have lung or liver disease; if you are pregnant, plan to become pregnant, or are breastfeeding or plan to breastfeed.
What should you know about KEVEYIS?
- Severe allergic and other reactions have happened with sulfonamides (drugs such as KEVEYIS) and have sometimes been fatal. Stop taking KEVEYIS at the first sign of skin rash, swelling, difficulty breathing, or any other unexpected side effect or reaction, and call 911 right away.
- Tell your healthcare provider if you take aspirin or if another healthcare provider instructs you to begin taking aspirin. High doses of aspirin should not be taken with KEVEYIS.
- KEVEYIS can cause your body to lose potassium, which can lead to heart problems. Your healthcare provider will measure the potassium levels in your blood before you start treatment and at certain times during treatment.
- Tell your healthcare provider about all other prescription and over-the-counter medicines you take, including supplements, as some medicines can interact with KEVEYIS.
- While taking KEVEYIS, your body may produce too much acid or may not be able to remove acid from the body. Your healthcare provider may run tests on a regular basis to check for signs of acid buildup.
- KEVEYIS may increase your risk of falling. Tell your healthcare provider right away if you experience a fall while taking KEVEYIS.
- The risks of falls and acid buildup are greater in elderly patients.
- It is not known whether KEVEYIS is safe or effective for people younger than 18 years of age.
What are the most common side effects with KEVEYIS?
The most common side effects are a feeling of numbness, tingling or burning (“pins and needles”) in the toes, feet, hands or fingers; trouble with memory or thinking; feeling confused; and unpleasant taste in the mouth.
These are not all of the possible side effects of KEVEYIS. Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch or call 1-800-FDA-1088.
Please see Full Prescribing Information.