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Here is the contact information of your dedicated support.

Strongbridge CareConnection makes sure you’re getting the support you need

Strongbridge CareConnection offers a range of support services for the PPP community, including:
  • A Patient Access Manager (PAM), who speaks with adults living with PPP to share information about upcoming programs and educational materials, answer questions about starting KEVEYIS, and offer financial assistance services. You can register to speak to a PAM at regardless of whether or not you are taking KEVEYIS, and a PAM will call you directly
  • PANTHERx Rare, the only specialty pharmacy through which patients can get KEVEYIS
Sign up for PAM 1-on-1 support

Getting started on KEVEYIS

Once your doctor has submitted a KEVEYIS prescription, you will have a dedicated PAM who will:

Check in with you regularly via phone

Be able to meet with you live or online if you have questions

Help you navigate insurance changes and switching doctors

KEVEYIS $0 co-pay program

Eligible patients may pay as little as $0 for their prescription*

Getting your KEVEYIS prescription

PANTHERx Rare will work directly with your doctor’s office to get information required by your insurer so that your coverage for KEVEYIS is reviewed appropriately.

Once your prescription is received, your PANTHERx Rare Case Manager will call you to confirm your insurance information and the address where you want your KEVEYIS sent. Add the PANTHERx Rare number (844-538-3947) to your phone’s address book so you know who is calling.

Connect with your case manager on the phone

PANTHERx Rare cannot ship out your KEVEYIS prescription until you speak with your Case Manager.

After you’ve gotten your KEVEYIS prescription

Once you receive your prescription, PANTHERx Rare will call you regularly to:

See how you are doing on KEVEYIS

See if you might need your dose changed, and report back to your doctor if necessary (with your permission)

Answer any questions you may have

QUICK TIP: Remember to call PANTHERx Rare every month to request your refill.

  • You can ask PANTHERx Rare to send you refill reminder texts—that way, you’ll get a text when it’s time to call to confirm your refill so it can be shipped to you.

Patient Ambassador

“I have support from my Patient Access Manager, who calls a couple of times a month just to check in.”
Kim L.

Learn more about Kim’s story >

Sign-up to talk with a PPP Mentor, who can share their experience with KEVEYIS.

*Eligible patients pay as little as $0 with a maximum annual savings of $10,000. The authorized specialty pharmacy will activate the copay card for eligible patients and apply for each prescription until the annual maximum has been reached. This card is not valid for prescriptions that may be reimbursed under a federal or state healthcare program, including Medicare, Medicaid, or any other similar federal or state healthcare program, including any state pharmacy assistance program. For additional questions about the co-pay program, including eligibility, call Strongbridge CareConnection at 844-KEVEYIS (538‑3947)



Indication and Important Safety Information

What is KEVEYIS?

KEVEYIS (pronounced keh-VAY-iss) (dichlorphenamide) is a prescription drug used to treat primary hyperkalemic periodic paralysis, primary hypokalemic periodic paralysis, and other similar diseases.

What should you tell your healthcare provider before taking KEVEYIS?

Tell your doctor if you are allergic to dichlorphenamide or other sulfa drugs; if you take high doses of aspirin, or if you have lung or liver disease; if you are pregnant, plan to become pregnant, or are breastfeeding or plan to breastfeed.

What should you know about KEVEYIS?

  • Severe allergic and other reactions have happened with sulfonamides (drugs such as KEVEYIS) and have sometimes been fatal. Stop taking KEVEYIS at the first sign of skin rash, swelling, difficulty breathing, or any other unexpected side effect or reaction, and call 911 right away.
  • Tell your healthcare provider if you take aspirin or if another healthcare provider instructs you to begin taking aspirin. High doses of aspirin should not be taken with KEVEYIS.
  • KEVEYIS can cause your body to lose potassium, which can lead to heart problems. Your healthcare provider will measure the potassium levels in your blood before you start treatment and at certain times during treatment.
  • Tell your healthcare provider about all other prescription and over-the-counter medicines you take, including supplements, as some medicines can interact with KEVEYIS.
  • While taking KEVEYIS, your body may produce too much acid or may not be able to remove acid from the body. Your healthcare provider may run tests on a regular basis to check for signs of acid buildup.
  • KEVEYIS may increase your risk of falling. Tell your healthcare provider right away if you experience a fall while taking KEVEYIS.
  • The risks of falls and acid buildup are greater in elderly patients.
  • It is not known whether KEVEYIS is safe or effective for people younger than 18 years of age.

What are the most common side effects with KEVEYIS?

The most common side effects are a feeling of numbness, tingling or burning (“pins and needles”) in the toes, feet, hands or fingers; trouble with memory or thinking; feeling confused; and unpleasant taste in the mouth.

These are not all of the possible side effects of KEVEYIS. Call your healthcare provider for medical advice about side effects. You are encouraged to report negative side effects of prescription drugs to the FDA. Visit or call 1-800-FDA-1088.